Our routine practice is to record treatment details and outcome details with validated questionnaires for the purpose of audit, service evaluation and in some instances, research.
All data that is collected is stored anonymously both here at QMC and as part of the European Spine Registry, specific details of which can be found on the Spine Tango website. All of the information entered into this database is fully anonymised on the British Spine Tango server in Oxford and it is impossible for anyone entering the databank externally to retrieve traceable patient information.
You may also be asked for consent to have your information collected for the British Spine Registry (BSR), a database set up by the British Association of Spine Surgeons (BASS) to monitor the outcomes of spinal procedures with the aim to improve patient safety and increase the understanding of an operation's success.
Patients with Spinal Muscular Atrophy (SMA) may be asked for consent for their details to be added to SMArtNet, an internet-based, national clinical database that has been developed to better understand SMA progression, aid multi-centre clinical investigation, and review the services available to SMA patients.
If your data is being collected as part of a specific research study you will be invited to participate separately with the option to opt-out.
Please do not hesitate to contact us with regards to any queries you may have in respect of this.
Last updated: May 2017